VCA Directory of Baby Loss Support and Associated Organisations in NZ
Support, Memory-Making and Information
A Star is Born Facebook page A Dunedin group providing memory making for bereaved families, set up in 2016. The service provides hand and foot casting, photography, products and keepsakes at no cost to families, and is a voluntary organisation.
Action to Improve Maternity (AIM)www.aim.org.nz AIM is a charitable trust that supports families following a birth tragedy. AIM’s core goals include supporting families in need due to needless death or injury of their family member through maternity system failure in NZ; to guide families through complex systems in place now and to aid in the creation of simpler systems in the future.
Angel Casts NZwww.angelcasts.co.nz Angel Casts create beautifully detailed hand and feet stone replicas of a baby or child who has left their parents arms too soon. These 3D stone casts provide bereaved families with a tangible memory of their wee angel. Being able to hold your child’s hand again, long after they’re gone, can offer comfort and healing for many parents.
This is a free service for Hamilton families and neighbouring areas.
Baby Loss NZwww.babyloss.co.nz This is a South Auckland-based group that also has branches in Hauraki/Piako and Christchurch. Their main service is the provision of Care Bags and their Tangible Memory Making Service, and they also hold coffee mornings, run baby loss awareness events and provide training and education for health professionals.
Change for Our Childrenwww.changeforourchildren.co.nz Change for our Children is a social innovation organisation that is committed to developing local, sustainable solutions. They focus on education around safe sleep and run the Pepi-Pod Programme, a sleep space programme that provides safe sleeping products for vulnerable infants.
Father and Child Trustwww.fatherandchild.org.nz The Father and Child Trust aims to bring a ‘dad perspective’ to existing family services and address the lack of information and support for New Zealand dads. They offer resources and information sheets, support and courses for fathers. They have active groups in Auckland, Wellington and Christchurch.
Forever Presentwww.islaandpema.webs.nz A small organisation set up by two mothers who experienced infant loss. They raise funds to provide care boxes to families who experience a SUDI death. The boxes are distributed through SUDI Liaison Officers as part of the coronial process.
Heartfeltwww.heartfelt.org.au Heartfelt is a volunteer organisation of professional photographers from across NZ and Australia dedicated to giving the gift of photographic memories to families that have experienced stillbirth, premature births, or have children with serious or terminal illnesses. All services are provided free of charge.
Miscarriage Support Wellingtonfacebook page Miscarriage Support Wellington aims to provide support, share stories and information about pregnancy loss, provide support during subsequent pregnancies and lend out books. They advertise a monthly meeting and have a closed Facebook group for online support.
Mothers Matter provides information on postnatal depression, anxiety and bipolar disorder for families and health professionals. They are primarily web based.
Miscarriage Support (Auckland) is a voluntary web based group that provides comprehensive information about miscarriage and associated topics on their website. They provide a pamphlet, Understanding Miscarriage, to hospital and health professionals throughout the country.
Neonatal Trustwww.neonataltrust.org.nz The Neonatal Trust is a registered charity providing support and coordination to families of neonatal babies as they make their journeys through neonatal intensive care, the transition home and onwards. There are four regional trusts in Auckland, Waikato, Wellington, and Canterbury. The Neonatal Trust provides information packs to families, regular morning teas/catch ups, two retail shops in Auckland and Wellington hospitals, and they support the NICUs and SCBUs by providing equipment and furnishing accommodation for parents.
New Zealand Organisation for Rare Disorders (NZORD)www.nzord.org.nz NZORD operates at a national level and provides online information resources for families affected by rare disorders. They provide direct support to assist small groups by providing a directory of 250 support groups, 45 websites, six online forums for support groups and regular newsletters.
Now I Lay Me Down To Sleep (NILMDTS)www.nowilaymedowntosleep.org NILMDTS trains, educates and mobilises professional photographers to provide beautiful heirloom portraits to families facing the untimely death of an infant. They have photographers in 40 countries around the world.
Nurturewww.nurture.org.nz A registered charity that supports research into reproductive health – stillbirth and recurrent miscarriage is one of their topics of research. Their website has stories from various families including bereaved parents.
Oliver’s Angelswww.oliversangels.com A Taranaki group providing memory making for bereaved families in the Taranaki region, set up in 2016. The service provides hand and foot casting and photography at no cost to families, and is a voluntary organisation.
Perinatal Anxiety & Distress Aotearoa (PADA)www.pmhnz.org.nz A national organisation working to raise awareness, champion best practice and eliminate stigma associated with perinatal mental health and well-being. PADA was previously the Perinatal Mental Health NZ Trust.
Post Abortion Trauma Healing Service (PATHS)www.postabortionpaths.org.nz A Christian based, independent, non-political, non-denominational organisation based in Christchurch that provides counselling for parents who have experienced an abortion. Working on setting up a national wide network of counsellors. They also run seminars for professionals.
Post and Antenatal Distress Support Group Wellington (PND Wellington)www.pnd.org.nz PND Wellington’s main aim is to provide support for women and their families who are experiencing distress/depression during pregnancy or after the birth of a baby. They also aim to provide support, information and education to women with PND, to her partner/family and to provide community education and professional consultation on PND. PND Wellington offers a fortnightly support/coffee group, resources, and peer support through its Facebook page.
Pregnancy Helpwww.pregnancyhelp.org.nz Pregnancy Help aims to provide free and client focused practical assistance, information and advice during pregnancy and early childhood. They offer a telephone support line for any women who is pregnant or has been pregnant, and their practical assistance includes equipment, clothing and other pregnancy items. Some branches of Pregnancy Help offer counselling and drop-in centres.
A Nelson-based group set up to provide a memorial pathway for bereaved families and provide funding for counselling and therapy sessions.
Remembrance Photographywww.remembrancephotography.org A web based resource for parents, families and health professionals to help guide them through the process of remembrance photography following the death of a baby. The resources have been developed through research with bereaved parents and consultation with Sands NZ. The brochure is now used in hospitals throughout NZ to introduce, inspire and assist parents and midwives.
Sands New Zealandwww.sands.org.nz Sands NZ is a nationwide network of support groups for parents and families who have experienced the death of a baby at any gestation or age, and under any circumstances. Sands provides support in the community through support meetings and face to face support, offers training and education for professionals and provides baskets, clothing and memory making items and services to (most) hospitals throughout the country.
SIDS and Kids NZwww.sidsandkids.org.nz Previously called SIDS NZ, SIDS and Kids NZ provides a 24-hour sudden infant death helpline, provision of bassinettes to high risk families, counselling, publications and peer support.
Skylightwww.skylight.org.nz A national not-for-profit trust that enables children, young people, their family/whanau and friends to navigate through times of trauma, loss and grief. Skylight facilitates access to expert information, education, professional services and support. They also educate, train and support professionals, agencies and individuals who assist those dealing with trauma, loss and grief.
Trauma and Birth Stress (TABS)www.tabs.org.nz Web based information on post-partum PTSD and birth trauma; TABS also provides information on research, individual contact people throughout the country, and international groups that provide support and information.
Twin Loss NZwww.twinloss.wordpress.com Web based support for families who have experienced the loss of a twin, triplet or a baby in a multiple birth. Twin Loss connects parents with a similar experience, have an active Facebook group and produce a newsletter. Families run informal coffee groups throughout NZ.
National Organisations (Partially or Fully Government Funded)
The Commission’s mission is to independently uphold consumer rights by promotion and protection, resolving complaints, service monitoring and advocacy, and education. The Commission has a free advocacy service that can be accessed by anyone who needs support in resolving a complaint or having questions answered.
Well Pacific Mother and Infant Service, working collaboratively on improving health and wellbeing for Pacific mothers and infants. They do this through pregnancy and safe sleeping education, smoking cessation and breastfeeding programmes.
A national programme dedicated to Mokopuna Ora and reducing the rate of SUDI for Māori. Provide policy advice, information, resources and training on the topic of reducing SUDI and safe sleeping. Whakawhetū has been instrumental in the Wahakura initiative throughout the country.
A nationwide network of volunteers who support victims of suicide, accidental or sudden death, fire, traffic accident, and civil defence emergency. Funded through the Ministry of Justice with a head office and 120 paid staff, but they rely on a majority of volunteers to deliver their service.